DEPT. HEALTH TO COMMISSION 3 REVIEWS ON LYME DISEASE

Today’s House of Commons debates – Tuesday 10 May 2016 Lyme Disease 4. Andrew Stephenson (Pendle) (Con): What progress has been made on improving diagnosis and treatment of Lyme disease.[904940] The Parliamentary Under-Secretary of State for Health (Jane Ellison): Lyme disease is a complex infection, so we recognise that there are real challenges in diagnosis and treatment. In the light of this, I am pleased to say that the Department plans to commission three reviews on the diagnosis, treatment and transmission of Lyme disease to inform future decision making. Andrew Stephenson: A constituent in Earby was struck down with a debilitating illness several years ago, which has totally destroyed her quality of life. Since then, I have been visiting her regularly at home every few months, as she has fought to get a diagnosis. Over recent months, all the evidence has started to point towards Lyme disease, but there seems to be precious little support out there for people with this condition. What more can my Hon. Friend do to support constituents like mine? Jane Ellison: In addition to the reviews that the chief scientific adviser is overseeing, we have commissioned the National Institute for Health and Care Excellence to develop a new evidence-based guideline for care, specifically to respond to the sort of situation that my Hon. Friend describes with his constituent. That is for publication in 2018 and it is being prioritised because of the interest in this area. https://hansard.parliament.uk/Commons/2016-05-10/debates/16051027000003/OralAnswersToQuestions Here is the link to the actual announcement in parliament. You need to select 09.47.07 on the RH side. http://www.parliamentlive.tv/Event/Index/fbd45ac2-43c6-41c0-b2d0-48a9f49b3b0b...

Lyme disease: a ticking time bomb

An article in The Conversation written by Vis-a-Vis Patron Hany Elsheikha, was published 28th April 2016  Concludes-  Tackling the threat The effects of the disease on so many body systems, and the debilitating impact on the life of the affected patient, have triggered a crisis that has far-reaching implications for public health and policy. When people get diagnosed with Lyme, they make a shift to a life of increasing uncertainty, particularly from a lack of adequate and credible information. It’s clear, given the rise in clinical cases across the world and the number of people who continue to suffer even after antimicrobial treatment, that Lyme disease is spreading rapidly. For example, in the US the number of annual reported Lyme cases has increased about 25-fold since the national surveillance began in 1982. Many aspects of the disease mechanisms, such as the chronic condition, remain controversial or evolving, due to the scarcity of robust evidence-based data. There is not even one consistent terminology that defines “chronic Lyme disease”. More measures are also needed to resolve the crippling uncertainty surrounding the infection. We need more research to help develop reliable diagnostic tests, identify sub-populations of patients who are most likely to benefit from antibiotic treatment, and ultimately to ensure that Lyme disease does not become a pandemic reality.   Go to this link to read the full article – https://theconversation.com/lyme-disease-a-ticking-time-bomb-57844...

Lyme in the 21st Century

  Published on Apr 20, 2016 Ten of the world’s top scientists from leading institutions discuss their scientific insights on the problems and potential solutions for Lyme disease. Notes from the video –   Senator Richard Blumenthall US Senate Speech   ‘The cases of Lyme are exploding in number and their severity impacts our economy as well as quality of life for Americans’ Introduced by David Rothman– Lyme Advocate     CDC reported 10 fold increase in the number of cases in 2013.     Dr Neil Spector Cancer researcher talks about implications in organ donation. He had a heart transplant due to undiagnosed Lyme Disease. ‘In the era of genomics are we using archaic unreliable methods to test for Lyme?’     Dr William H Robinson Stanford University talks about the need to develop next generation tests that are much more accurate and sensitive to identify people with Borrelia Burgdorferi as well as other tick borne infections.     Dr Safwan Jaradeh Stanford University Neuromuscular and Neurological faculty. ‘Nobody seems to think well could it be something like Lyme.’     Dr Brian Fallon Columbia University Director of the Lyme and Tick-borne diseases research center at Columbia.  says – Lyme can cause many symptoms he talks about a child who manifested with compulsive cycling behaviour and anorexia which was caused by Lyme Disease and with treatment symptoms went away. Dr Neil Spector goes on to say- ‘Over 300000 cases a year I think demands more attention than Zika virus which overnight becomes a W.H.O. global health crisis. So it’s not to minimize the problems of Zika but it is saying there are...

Understanding Bartonella

Webinar recorded July 10, 2015 Bartonella infections are increasingly implicated in complex chronic disease syndromes, yet are extremely difficult to diagnose accurately. The purpose of this webinar is to raise awareness about Bartonella; its prevention, diagnosis and treatment. Medical, veterinary and public health professionals will benefit from attending this webinar. Speakers include subject matter experts Edward Breitschwerdt, DVM and B. Robert Mozayeni, MD.  Please note that the content is highly technical and designed for an audience of medical, veterinary and public health professionals. Learning objectives include the ability to: Describe the epidemiology of Bartonella; Identify populations most at risk for Bartonella infection; and Explain the process for accurate and timely diagnosis of and treatment considerations for Bartonella Our mission is to educate as many people as possible about the increasing medical importance of Bartonella.  As an advocate for One Health, please share this free webinar link with others who may be interested.   Free Webinar: Understanding Bartonella Earlier post http://www.visavissymposiums.org/bartonellosis-one-health-perspectives-on-an-emerging-infectious-disease/  Galaxy Diagnostics – http://www.galaxydx.com/web/ Links to further research...

NORTHEASTERN RESEARCHERS INVESTIGATE FOUR PROMISING NEW TREATMENTS FOR LYME DISEASE

‘when North­eastern researchers reported last May how the bac­terium that causes the dis­ease evades antibi­otics, sug­gesting new treat­ments, the media and the gen­eral public took notice. Uni­ver­sity Dis­tin­guished Pro­fessor Kim Lewis, who leads the Lyme dis­ease research team, is now expanding that ther­a­peutic reach with the help of a $1.5 mil­lion grant from the Steven and Alexandra Cohen Foundation. The team is pur­suing four arms of treatment-​​related research at Northeastern’s Antimi­cro­bial Dis­covery Center, which Lewis directs. They are: a mouse study of a reg­imen that erad­i­cated the bac­terium in the test tube, set­ting the stage for human trials; antibi­otic cock­tails using existing drugs; strate­gies to dis­cover new drugs that selec­tively target the Lyme bac­terium; and ways to alter the com­po­si­tion of the microbiome—the com­mu­nity of microor­gan­isms inhab­iting the human body—to stop the autoim­mune reac­tions that char­ac­terize the disease. All four show exciting promise. The grant, Lewis says, “will give us the flex­i­bility to test our approaches in par­allel, which will save us an enor­mous amount of time.” If Lyme is caught early, patients gen­er­ally recover quickly when treated with antibi­otics, pri­marily doxy­cy­line. How­ever, 10 to 20 per­cent of patients go on to develop a debil­i­tating chronic con­di­tion called Post-​​Treatment Lyme Dis­ease Syn­drome, or PTLDS, with symp­toms that include extreme fatigue, arthritis, muscle pain, and cog­ni­tive difficulties. “I find it amazing that when you show up at the doctor’s office you are not told that there is a 10 to 20 per­cent chance that your life as you know it has ended,” says Lewis. “Nobody seems to be focusing on the next step: How to pre­vent the sub­se­quent rise of the chronic condition.”  ...